Immunizing Texas Children --
A Shot in the Dark?
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by Shannon
Richardson
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Texans
are a proud bunch. We like to win and when we’re not winning, we like to
place well at least. One thing is certain; Texans hate to rank at the
bottom. But when a national panel last looked at the immunization rates of
children ages 19 to 35 months, that’s exactly where the Lone Star State
placed – dead last.
These
are our toddlers, our pride and joy, and they might be at more risk of
catching vaccine preventable diseases here in our beloved state than
anywhere else in the Union. Something has to be done. With the next
legislative session only months away, TAFP is gearing up to make this a
priority.
For
an example of what can happen when a society doesn’t remain vigilant
about the importance of immunization, just look at the rise in the
incidence of pertussis in Texas over the past several years. According to
the Texas Department of Health, more than 325 cases of pertussis, or
whooping cough, were reported throughout Texas in 2000. Children ages 4
and under accounted for nearly 200 of these cases. Although this disease
is preventable, two children died of whooping cough that year. The
following year, Texas had 575 reported cases of whooping cough, and almost
half of those were children ages 4 and younger.
Already
this year, the number of cases of whooping cough is close to topping 200.
The cover story of the June 2002 issue of Texas Medicine explores this
steady climb in pertussis cases, suggesting that perhaps doctors have let
down their guard against a disease they thought was under control.
Although
immunization rates generally are high and disease levels low in Texas and
across the United States, the task of immunizing children should never be
taken lightly. Texas is facing the consequences of doing just that.
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The
state ranked last in the 2000 National Immunization Survey, an
ongoing study by the National Immunization Program at the Centers
for Disease Control and Prevention that examines vaccination levels
for children 19 through 35 months of age. Only 69.5 percent of Texas
children in this age range had completed the recommended doses of
vaccines. The national average was 77.6 percent.
The
most recent data published by CDC covered the third quarter of 2000
through the second quarter of 2001, and in these rankings, Texas
didn’t fair much better. The state ranked at or near the bottom in
almost every category of estimated vaccination coverage reported,
coming in last, for example, in the coverage of kids ages 19 to 35
months with four or more doses of any diphtheria and tetanus toxoids
and pertussis vaccines.
This
spate of pertussis outbreaks provides an example of the dangerous
consequences of not immunizing children properly. “[Pertussis has]
the highest morbidity and mortality of all vaccine-preventable
diseases in children right now in Texas,” says Linda Linville,
chief of the Bureau of Immunizations and Pharmacy Support at TDH.
“I hate Texas to be last with something as basic as immunization
levels, and it very much concerns me for it indicates to me the real
status of children’s health in Texas.”
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Failing
to immunize responsibly can have devastating effects. Between 1989 and
1991, more than 55,000 cases of measles were reported in the United
States. This epidemic resulted in over 11,000 hospitalizations and 130
deaths. In Texas alone, 9,400 measles cases were reported between 1988 and
1992, and 26 people died, according to TDH statistics. Texas accounted for
more than half of the nation’s measles cases in 1992. The direct medical
costs for this outbreak reached an estimated $150 million. TDH officials
attributed the severity of this outbreak to a failure in the proper
immunization of preschool-age children.
Fortunately
the United States was able to recover from the epidemic and for a while,
the nation as well as the state focused more attention on the necessity of
immunizations. The federal government put forth a comprehensive national
response to the under-immunization problem called the Childhood
Immunization Incentive. This program set goals for the country’s
immunization coverage levels and introduced the concept of computerized
information systems that could be used as immunization registries. In
1994, CII also resulted in the initiation of the Vaccines for Children
Program, which attempts to remove cost as a barrier to immunization.
During
this time of heightened awareness, TDH became a national leader in the
effort to increase childhood vaccination coverage. In 1993, the Texas
Legislature passed Senate Bill 266 mandating that every child in Texas be
vaccinated age-appropriately. That year TDH also announced it would
reimburse Medicaid providers for vaccinating Medicaid patients.
In
1993, TDH initiated an immunization awareness campaign called Shots Across
Texas and according to Tom Banning, TAFP director of legislative affairs,
the program proved “wildly successful.” Hundreds of businesses,
agencies, associations and non-profit organizations in addition to Gov.
Ann Richards and the Texas Legislature participated in this public-private
partnership working to achieve the goal of fully immunizing Texas children
up to 2 years old.
By
1994, more than 200 local immunization coalitions functioned in Texas
mostly as a result of Shots Across Texas. Thirty corporations, foundations
and organizations had contributed funds valued at nearly $1 million. More
than 800 Texas television and radio stations had aired public service
announcements encouraging immunizations. TDH and the Texas Medical
Association had distributed provider education packets to more than 13,000
primary care physicians, and Shots Across Texas personnel had sent out
brochures, posters and press kits in both English and Spanish.
Through
1996 Texas saw an increase in immunization levels and a decrease in
vaccine-preventable disease. In a 1994 news release, the Texas
Commissioner of Health said that after only one year Shots Across Texas
had already made “a measurable difference.”
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So
what went wrong?
If
Texas was doing so well less than 10 years ago, why does the
state currently rank so low? No one reason seems to explain the
fall.
According
to Candie Phipps, director of advocacy and health policy at the
Texas Pediatric Society, the size of Texas and the dynamics of
its population are major obstacles to proper immunization.
“Texas is so big, and by having such a young population, we
have more people to immunize and that tends to bring down our
rates quite a bit,” Phipps says.
Every
day 11,000 babies are born in the U.S, and about 1,000 of these
are born in Texas. Furthermore, the vaccination schedule for
children under 6 years of age is complicated. Children in this
age group require between 18 and 22 shots. Attempting to
administer all of these shots and maintain an accurate, updated
record on each vaccination is an enormous task.
Another
reason for Texas’ poor performance could be the lack of a
proactive approach in stressing to the public the importance of
vaccinating children. “Texas spent no money last year on a
public education campaign for immunizations,” Phipps says.
“When people don’t understand the importance of
immunizations, they tend to forget about them.” She says
getting health care and immunization information to individuals
along the border has proved especially problematic.
Jane
Rider, M.D., a San Angelo pediatrician and the legislative chair
of TPS, also points out a deficiency in public immunization
education. “In the last four to six years, there has not been
an emphasis on immunization in the state,” she says.
“Adequate resources have not been directed toward
immunizations.”
Insufficient
health care coverage could be another factor. Some might be
aware of the importance of vaccinations, but may not have the
means to obtain them.
While
recently reported vaccine shortages don’t affect the published
CDC rankings, they could add another dimension to the problem in
the near future. Shortages in measles-mumps-rubella,
diphtheria-tetanus-pertussis and tetanus-diphtheria vaccines as
well as others have the potential to diminish further the
state’s immunization coverage. |
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Who’s
got it right?
In
the 2000 National Immunization Survey, North Carolina had the
highest immunization level ranking: 87.6 percent of its children
ages 19 to 35 months were completely immunized. The secret to
North Carolina’s success is a combination of strategies used
to promote vaccinations across the state, according to Laura
Leonard, spokeswoman for the immunization branch of the North
Carolina Department of Health and Human Services.
Along
with 14 other states, North Carolina takes advantage of a system
called universal vaccine purchasing, (UVP), where the state
purchases vaccines in bulk, then distributes them to health care
providers. “All children in North Carolina are eligible to
receive free [required] vaccines,” Leonard says.
North
Carolina also employs an immunization registry, a confidential,
computerized information system used to collect vaccination data
about all children within a specific geographic area. If all
parties participate fully and the vaccine registry is complete,
it can be an excellent tool in the stewardship of public health.
It can be used to help keep kids up to date on their shots and
to prevent unnecessary doses administered by multiple providers.
Most importantly, a well-maintained registry can help state and
local health officials target under-immunized pockets of the
population.
“Because
we don’t have infinite resources in this state, we need to
direct them where the problems really are and not be spending a
lot of money where the problems really aren’t,” Rider says.
“I think everybody benefits from having the data and being
able to design a program that really targets the areas where the
problems are.”
In
North Carolina, 100 public health departments report their
immunization data to one statewide registry. These smaller
health departments are active in doing their parts to promote
high immunization levels by tracking and conducting follow-ups
to keep children on schedule with their shots.
Finally,
North Carolina seems to have a general awareness of the
lingering threat of disease. “The majority of the parents
realize the importance of vaccines, both for their children and
for the general public,” Leonard says.
Texas
health care officials acknowledge that the low immunization
rates in pre-schoolers is a problem, and they are working
aggressively to fix it. TAFP, along with TPS, TMA and the Texas
Academy of Internal Medicine, has produced a set of
recommendations to address this problem with the goal of
improving the health and safety of Texas children. |
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Keeping
Track
The
first recommended solution is to improve the state’s existing
immunization registry, ImmTrac. In 1994, TDH and Electronic Data
Systems, a private information technology provider, worked
together to develop ImmTrac. The registry contains millions of
records for more than 4.5 million children under 18 years of
age.
The
theory of maintaining an immunization registry is fairly simple.
Following the birth of a child, the parent can register the
child in ImmTrac by checking a box on the child’s birth
certificate, indicating consent to participate in the program.
The parent is asked to sign an ImmTrac release form at each of
the child’s vaccination appointments. The party administering
vaccines then reports its vaccination records to ImmTrac, where
the statewide data are compiled.
But
the reality is that the Texas immunization registry is not
getting the job done. “Currently we’re not able to maximize
the full benefits of a statewide registry because we don’t
have a complete history on a lot of the children who are in
ImmTrac,” Linville says. “ImmTrac’s potential is yet to be
seen.”
ImmTrac
currently functions as an opt-in registry, which means that
parental consent is required before a child’s information can
be included and updated in the registry. Furthermore, neither
physicians nor health plans are obligated to report
immunizations to the registry. All this adds up to a rather
incomplete record.
“Oh,
it’s a disaster,” says Phipps. “Ninety-nine percent of the
children sign up for [the registry initially], but the
physicians and health care plans don’t participate in it
because it is such a burden to constantly check whether or not
[the patients] want to remain within ImmTrac.
“The
paperwork burden on physicians is just through the roof,”
Phipps adds, pointing out a major factor in physician
non-participation. “Our main request is to make [ImmTrac] an
opt-out registry where you just assume the children are in
it.”
Many
agree that the paperwork deters providers from contributing
information to the registry. Jane Rider, M.D., who has
participated in ImmTrac for five years also admits that it is
“a bit of a hassle,” and says that the extra work adds about
three or four minutes to the vaccination process. When
administering 20 vaccines a day, those extra minutes add up
quickly. Decreasing
the time needed to report to the registry could increase overall
participation in ImmTrac.
Frequently
issues surrounding parental consent hamper the updating of
vaccination records in the registry. Physicians and health
providers often are unable to give complete immunization
information because of confusion over how consent is tracked or
whether it has even been given. An opt-out registry could
alleviate much of this confusion by automatically placing the
child in the registry unless the parent specifically requests
the child be removed.
“I
think getting the opt-out proposal should boost [physician]
participation some,” Rider says. “A lot of providers have
never heard of it, so there’s going to be a lot of provider
education necessary.”
David
Scott, director of the ImmTrac program, agrees. “There are
groups pushing for [an opt-out registry], and that would
increase the effectiveness the registry tremendously,” he
says.
An
incomplete registry, however, is not the only reason why Texas
finished last in the 2000 NIS. “The Texas immunization
registry is a tool that can be used to help raise immunization
rates, but it’s not the cause of low rates nor would it be the
cause of high rates,” Scott says. “There are a lot of other
factors involved.”
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Show
me the money
One
such factor is the cost of vaccines. Texas does not have universal
vaccine purchasing, and the second recommendation is to conduct
more research on UVP with the possibility of implementation.
Under
UVP, the state would purchase and pay for all required vaccines
for all children, regardless of income level or health insurance
coverage. Using this program, state-regulated plans would cover
vaccines mandated for school entry plus all vaccines recommended
by the Advisory Committee on Immunization Practices, a panel of 15
experts chosen by the Secretary of Health and Human Services. This
would most likely increase the number of children who receive
their immunizations on time.
In
the 2000 CDC survey, seven of the top 10 states with the highest
immunization rates used UVP. Of the bottom 25 states, 20 didn’t
use UVP.
The
Vaccines for Children program offers another opportunity to
increase state reimbursement for the administration of vaccines. A
vaccine currently costs a physician about $5.83 to administer, but
the state only reimburses $5. The Centers for Medicare and
Medicaid Services permits a much higher state maximum for
administration fees.
Standardizing
vaccine abbreviations and coding among public and private payers
and pharmaceutical companies might also help end confusion and
inconsistencies in the billing of vaccines. |
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Spreading
the Gospel
Another
recommendation is to institute a continuous, statewide education
campaign, similar to the Shots Across Texas campaign of the
mid-90s. A statewide alliance composed of local, regional and
state health departments could improve coordination and
communication efforts to raise immunization levels among children.
“We
really need to push within the first two years of life, to
publicize and encourage parents to get their children immunized
rather than waiting for them to enter school,” Rider says. Every
doctor’s visit should be viewed as “an opportunity to
immunize,” she adds.
An
education program must do more than convey the importance of
immunizations. It has to dispel misconceptions associated with
them. “Most of the time, the news points out the negatives of
vaccines,” Linville says. “We would like to try to balance
some of the negative things that come out.”
A
recent TPS report refers to the need of education for vaccine
providers, in addition to parents: “Provider vaccine education
is extremely important. With ongoing changes in the recommended
childhood immunization schedule and the addition of storage and
administration requirements for new vaccines, health care
providers must be better informed.”
Linville
suggests launching education campaigns as well as distributing
informative handouts to physicians and parents. Securing funding
for immunization education has also proven a challenge, but Phipps
says TPS hopes eventually to obtain grants and financial support
to reinstate a statewide education program.
Andrew
Eisenberg, M.D., chair of the TAFP Commission on Public Health and
Clinical Affairs, says that TAFP has been working with TPS and TMA
to put together these proposals in time for the 78th Legislative
Session next January. “What we’re trying to do is gather
together all interested parties…and formulate a plan for how the
state can improve the health of all Texans,” he says. “One of
the most cost-effective public health measures that we’ve ever
come up with in the United States is the advent of vaccines and
immunization for vaccine-preventable illnesses. The majority [of
vaccines] are given in doctor’s offices and a lot of those are
family physicians, so it’s incumbent on us to lead the way.”
The
percentage of fully immunized children ages 19 to 35 months is
dismally low right now in Texas. Something must be done to remedy
this. At least Texans can be proud of their ranking in one area:
the immunization rate of school-age children in Texas is actually
very high.
“Our
school-age kids are well-protected,” Linville says. “They’re
95 and 98 percent [covered] for all those vaccines. Our school-age
children are not the ones we’re worried about at all. It’s the
younger kids, the pre-schoolers. They’re the most vulnerable.” |
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